I was driving to the gym when a message from my youngest brother popped up in our siblings group chat.
He is a physician and had just had a 45-minute meeting with my parents and a palliative care doctor. This is a type of care that focuses on providing relief from the symptoms of serious and chronic illnesses.
My father has not been living at home for the past 3 1/2 months, ever since he entered a hospital for worsening symptoms of his Parkinson’s disease. For more than two months, he’s been living in a skilled nursing facility because he needs round-the-clock help with daily tasks.
I’ve written quite a bit about my father’s decline because it’s been such a shock for me. He went from a "young-old" man in his mid-to-late 70s to unrecognizably frail and dependent so much quicker than I ever expected.
My brother was about to deliver another difficult blow to my siblings and me.
“Dad is updating his code status to ‘do not resuscitate,’” he wrote. Our dad told him that he doesn’t want chest compressions, intubation, a feeding tube, dialysis or any other medical intervention that might be needed. He also decided to end any PET scans and follow-up appointments with his oncologist because he doesn’t want treatment, even if his cancer returns.
My brother explained everything in detail to our dad and asked multiple times if he was sure. He assured us that our father was making an informed decision completely of sound mind and stable mood.
I sat in the car for a few minutes processing his words. Even though my father has made these same preferences known to us on prior occasions, it felt like a gut punch realizing that it was going to become an official change in his medical records.
My father is the extreme opposite of a quitter, and raised us all to have grit, resilience and a fighting spirit. He’s also only 81. While I recognize this is older than the average lifespan of 76 for an American male, both his parents lived into their 90s. His older siblings also lived to their late 80s and 90s.
Longevity is a hallmark of their sturdy genes.
Perhaps my father will also get those extra years, but he’s decided that quality matters over quantity. I respect that. Honestly, I would make the exact same choice.
So why do my eyes still fill with tears and my chest tightens whenever I think about it?
The last couple of weekends I’ve spent visiting my father have been delightful. He’s adjusted to where he’s staying. His mental cognition and mood are better than I’ve seen in recent years. He asks about my children, my husband and my dog, Frankie.
I show him pictures of how my hostas, jasmine plant, hydrangeas and bougainvillea are doing. He grew up in Model Town, a suburb of Lahore, Pakistan, in a house surrounded by all sorts of fruit trees and greenery. His green thumb has planted flourishing flowers and trees at every home he’s had.
Right now, three huge crepe myrtles are blooming with hot pink flowers in my parents’ backyard. In Houston, they grow to the size of large trees. I took photos of the trees and flowers to show him. He teared up when he saw how they were thriving.
“I thought I didn’t have anything left to live for,” he said. “But maybe I do.”
He asked me if I could take him to the backyard sometime, so he could see the trees again. I said I would try.
The next day, I cut five of those showy, crinkled-petal blossoms and put them in a jar filled with water. On my next visit, I took them to his room. His face brightened when he saw the vibrant color on the delicate, wrinkled flowers.
I put them on the dresser, under the television, directly across from his bed.
I hope whenever he sees them, he’s reminded.
There’s beauty and love to live for.